AHH....so many thoughts run, or rather RACE, through my head as I sit throughout my day (or drive, or cleanup, or feed kiddies, or edit photographs, or talk to my BFF) that I feel as though I should start to put my nifty little iPhone notes to good use. Even while lying in bed at night, with Laws' skinny little arms wrapped around my neck as he doses off to the land of nod, I find so many wonderful thoughts and things to talk about it, write about, be thankful for. There are just so many I get wrapped up in the moment and then.....POOF. There are papers to fill out for school, the dishes still need to be done (note to self: yogurt spoon still in his lunch box. will rot if i don't remember to put in dishwasher), tuition checks paid, check bank accounts so that we can pay said tuition, make sure sheets get turned on in dryer again (pet peeve: sheets not completely dry. like when they get all twisted and those nasty little parts stay wet. ugh.), revamp diet plan for the week (you know that changes weekly, depending on my sweet tooth. hence, the extra 10 pounds since June), make a life list, pay taxes (not going there AGAIN!)......
So you see everyone....I am well intentioned to keep you in the KNOW with me and us and them and it.........oh, you get what I mean right? I just run so many wonderful things through little filters all day waiting for the chance to bring it to the blog but somehow they never make it. And frankly, I just have a hard time being......I don't know the word...superficial....for the sake of having something to write about or to put up here. I always want to have good content that I can talk openly about and not
....."This is Jim and Sara.....and what a cute couple. And these are their kids, Sue and Jack....aren't they cute too?" post.
SO, with the coming of 2009 and the start of a new year and I have started with one of the things on my life list and that is to blog at least every other day and to add precious and funny and relevant and irrelevant content so that my clients, friends, family, and potential clients can have something to enjoy or something to look forward to. Hopefully I can find something enlightening or funny (if you don't have humor, then WHAT exactly DO you have right?) or interesting to share. Even if it's just a thought or two. 2009...here I come.
As the holiday season approaches, I sit and look around at the busyness of everyone and everything but am finally able to (after the complete mad dash of client holiday sessions and Christmas card orders) just be. I'm not sure what just BEING means but I embrace every Christmas season with a sense of magic and wonder and this year seems to be putting a tiny, but much needed, spring in my step in terms of being a mom and enjoying BOTH of my children.
The past few years with Laws have literally been some of the most difficult that I can remember. Last year at this time my heart was broken. So tattered and frayed and worn. But mostly broken. Broken because I felt like he was so broken. Beautiful in every way, but just broken. The wall of an indescribable nothingness that kept him from us. The mysterious cloud that surrounded his spirit and his face. It was like I couldn't even SEE his face. Even though looking at him and his beauty made my insides hurt, I was staring at eyes that had nothing but grey matter behind them. The words that do not come, the words that don't describe what we SEE when we really LOOK INTO our children's eyes still escape me. There is something about what you feel in your heart when you look into the eyes of even a baby that seems to say....I LOVE YOU. Or I"M HERE with YOU. Those unexplained feelings, those organic moments that happen so naturally with a typical child just DON'T with a child that has autism. And last year, they didn't with Laws. But this year......I see a spirit. The mountain of AUTISM that surrounded him and me and and us and my thoughts seemed insurmountable on most days. The thought that at 3.5 years he had no clue who Santa was or why we opened presents or the point of presents or Christmas, for that matter, was sickening to me. The repetitive words and ear piercing shrieks every few minutes started to make me weak. I felt like on some days I would just collapse with this child that was mine and whom I would die for but couldn't seem to find.
Over the course of this past year, after many hours of ABA therapy and a regular preschool (in which we have an aid that accompanies him for about half of his 16 hour school week) where he is required to participate and do the things that all of his peers are doing......he has come a long way. No doubt. I pray so hard every day. I beg for his recovery. I ASK for a pardon for him. I plead with St. Michael the Archangel and our Mother Mary to bring him to US. To open up his brain, the pathways, the connections......to take whatever it is that Autism is stealing from him and give it back. And you know, some days I think they are listening. Some days I feel as though all of the prayers and all of the therapy and all of the love that is given to him is helping. He has become so social and loving and we have seen so many wondrous clues as to who Laws really is. Who this gift that we have been given is supposed to be to the world. It is humbling and amazing. If ever there was a mom to love their child out of autism, it will be me. I know that in reality he will always have autism. He will always be different. But I will never......for the rest of my life.....quit trying. Never quit praying. Never quit asking.
Yet, I will forever wonder why. Why me. Why us. There is a reason, surely....and you know.....there are some days I see it. I see what joy he brings to us and dumbfounded at what he has taught me. What he has taught Lily. The beautiful, magnificent soul that she is. One of my other only hopes for him is that he realizes one day the magnitude of her love for him.
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